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Bibliography on Ethics, Patient's Rights, etc. re: End-of Life Issues, Death and Dying
Bibliography Assembled by Professor Kathleen Fowler, Ph.D.,CT, School of Social Sciences and Human Services, Ramapo College of New Jersey

For selected bibliographies on other topics related to Death and Dying, Life and Living please visit D&D Bibliography Individual Sections Links : http://phobos.ramapo.edu/~kfowler/d&dbibsectionslist.html
Suggestions for additional materials -- and/or topics for this bibliography would be welcome.  Please send suggestions to Professor Kathleen Fowler at kfowler@ramapo.edu  . 
(Where a call number appears the book is available through the George Potter Library at Ramapo College. Visit the library at http://library.ramapo.edu ).

American Counseling Association.  Code of Ethics and Standards of Practice.  Alexandria, Va: American Counseling Association, 1995.
Anderson, J. R. and B. Barrett, eds.  Ethics in HIV-Related Psychotherapy: Clinical Decision Making in Complex Cases. 2001.  RC607 .A26 E85 2001

Annas, George J. Rights of Patients: the Authoritative ACLU Guide to the Rights of Patients. 2004. KF3823 .A96 2004
Anspach, Renee.  Deciding Who Lives: Fateful Choices in the Intensive Care Nursery.  Berkeley: Univ. of California Press, 1993.
Ball, Howard.  Supreme Court in the Intimate Lives of Americans: Birth, Sex, Marriage, Childbearing, and Death.  2002.  KF3760 .B35 2002.
Battin, M. Pabst.  The Least Worst Death:  Essays in Bioethics on the End of Life.  1994.
Battin, Margaret Pabst. Ethical Issues in Suicide. 1995 HV6545 .B26 1995
Battin, Margaret P., Rosamond Rhodes and Anita Silvers, eds.  Physician-Assisted Suicide: Expanding the Debate.  NY: Routledge, 1998. R726 .P496 1998
Bayertz, Kurt.  Sanctity of Life and Human Dignity.  1996.

Bedau, Hugo Adam and Paul G. Cassell, eds. Debating the Death Penalty: Should America Have Capital Punishment? The Experts on Both sides Make Their Best Case. 2004. HV8699 .U5 D635 2004
Beauchamp, T., and J. Childress.  Principles of BioMedical Ethics.  5th ed. 2001.

Behuniak, Susan M.  and Arthur G. Svenson.  Physician-assisted Suicide: The Anatomy of a Constitutional Law Issue.  2003.  KF3827 .E87 B44 20003.
Brannigan, Michael C. and Judith A. Boss.  Healthcare Ethics in a Diverse Society.  Mountainview, Calif.: Mayfield, 2001. R724 .B72 2001
Brogden, Michael.  Geronticide:  Killing the Elderly.  2001.  HV6250.4.A34 B77 2001
Buntin, M. B. and H. Huskamp.  "What is Known About the Economics of End-of-Life Care for Medicare Beneficiaries."  Gerontologist.  42:3 (2002): 40-48.
Caplan, Arthur L. and Daniel Hl Coelho, eds.  Ethics of organ transplants : the current debate. 1998 RD120.7 .E86 1998    

Carrese, J. A. and L. A. Rhodes.  "Western Bioethics on a Navajo Reservation:  Benefit or harm?"  Journal of American Medical Association.  274 (2004): 826-829.
Cassel, Christine K., John M. Ludden and Grace M. Moon.  "Perceptions of Barriers to High-Quality Palliative Care in Hospitals."  Health Affairs 19:5 (2000): 166-72.
Christakis, Nicholas A.  Death Foretold: Prophecy and Prognosis in Medical Care.  1999.
Cohen, C. B., J. C. Heller, B. Jennings, E. F. M. Morgan, D. A. Scott, T. F. Sedgwick, and D. H. Smith.  Faithful Living, Faithful Dying.  Anglican Reflections on End of Life Care.  2000.
Cohen, Lawrence.  No Aging in India:  Alzheimers, The Bad Family, and Other Modern Things.  1998.

Cohen-Almager, Raphael. Right to Die With Dignity: An Argument in Ethics, Medicine and Law. 2001 R726 .L635 2001
Curry, Lynne. Human Body on Trial: A Handbook with Cases, Laws, and Documents. 2002. KF390.5.H85 C87 2002
DeVries, Brian, ed.  End of Life Issues:  Interdisciplinary and Multidimensional Perspectives.  1999.  HQ1073 .E56 1999.
Doka, Kenneth J., Bruce Jennings and Charles A. corr, eds..  Living with Grief:  Ethical Dilemmas at the End of Life.  2005.  THE HOSPICE FOUNDATION TEXT THAT ACCOMPANIES THE 2005 CONFERENCE

Dorff, E. Matters of Life and Death:  A Jewish Approach to Modern Medical Ethics.  1998
Downe, Jocelyn.  Dying Justice: A Case for Decriminalizing Euthanaisa and Assisted Suicide in Canada.  2004.

Dranove, David.  What's Your Life Worth?  Health Care Rationing ... Who Lives? Who Dies? And Who Decides?  Financial Times/Prentice Hall Books,  2003. RA410.5 .D73 2003
Drought, Theresa S. and Barbara A. Koenig.  "'Choice' in End-of-Life Decision Making:  Researching Fact or Fiction?"  Gerontologist.  42:3 (2002): 114-28.
Ebrahim, A. Organ Transplantation, Euthanasia, Cloning and Animal Experimentation: An Islamic View.  2001.

Ethics Committee/Society of Critical Care Medicine.  "Consensus Statement of the Society of Critical Care Medicine's Ethic Committee Regarding Futile & Other Possibly Inadvisable Treatments." Critical Care Medicine 25:5 (1997): 887-91.
Filene, Peter G.  In the Arms of Others:  A Cultural History of the Right-to-Die in America.  Chicago: Ivan R. Dee, 1998. R726 .F45 1998
Finucane, T. E., C. Christmas, and K. Travis.  "Tube Feeding in Patients with Advanced Dementia:  A Review of the Evidence."  Journal of the American Medical Association 282:14 (1999): 1365-70.

Foley, Kathleen and Herbert Hendin.  Case Against Assisted Suicide:  For the Right to End-of-Life Care.  2002.  R726 .C355 2002
Forester-Miller, Holly and Thomas Davis.  "A Practitioner's Guide to Ethical Decision Making."  A free publication of the American Counseling Association available at http://www.counseling.org
Fox, Elaine.  Come Lovely and Soothing Death:  The Right to Die Movement in the United States.  1999.  R726 .F69 1999.
Frank, Gelya et. al.  "A Discourse of Relationships in Bio-Ethics: Patient Autonomy and End-of-Life Decision Making among Elderly Korean Americans."  Medical Anthopology Quarterly.  12:4 (1998): 403-23.
Freeborne, Nancy, Joanne Lynn & Norman A. Desbiens.  "Insights about Dying from the SUPPORT project.  The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments."  Journal of the American Geriatric Society.  48:5 supp. (2000): S199-205.
Gillick, M. R.  "Rethinking the Role of Tube Feeding in Patients with Advanced Dementia."  New England Journal of Medicine.  342:3 (2000): 206-10.
Hall, Stephen S.  Merchants of Immortality:  Chasing the Dream of Human Life Extension.  2003.
Halphern, Jodi.  From Detached Concern to Empathy:  Humanizing Medical Practice.  2001.
Harakas, S. Health and Medicine in the Eastern Orthodox Tradition.  1990
Hawkins, Gail, ed.  Physician-assisted Suicide 2002. H31.062 P70.
Hendin, Herbert.  Seduced by Death: Doctors, Patients and Assisted Suicide.  WW. Norton, 1998. R726 .H46 1998
Hendrick, Judith.  Law and Ethics in Nursing and Health Care.  2000.  RT42 .F64 2000.
Hoffmaster, Barry. ed.  Bioethics in Social Context.  2001.
Holstein, Martha B.,  Phyllis B. Mitzen, eds.  Ethics in Community-Based Elder Care. 2nd ed.  R725.5 .E885 2001
Huskamp, Haiden A., et. al.  "Providing Care at the End of Life:  Do Medicare Rules Impede Good Care?"  Health Affairs.  20:3 (2001): 204-11.

Ikeda, Daisaku, Guy Bourgeault, Rene Simard.  On Being Human:  Where Ethics, Medicine and Spirituality Converge.  2003. BQ4570 .M4 1324 2003
Institute of Medicine.  Approaching Death:  Improving Care at the End of Life.  1997.
Institute of Medicine.  Unequal Treatment:  Confronting Racial and Ethnic Disparities in Health Care.  Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care.  2002.
Institute of Medicine.  When Children Die:  Improving Palliative and End-of-Life Care for Children and Their Families.  2003.
Jamison, Stephen.  Final Acts of Love:  Families, Friends, and Assisted Dying.  1995.  R726 .J36 1995.
Jennings, Bruce.  "A Life Greater than the Sum of its Sensations:  Ethics, Dementia, and the Quality of Life."  Journal of Mental Health and Aging.  5:1 (199): 95-106.
Johnson, Nancy, et. al.  "Towards a Good Death.  End-of-Life Narratives Constructed in an Intensive Care Unit."  Culture, Medicine & Psychiatry.  24:3 (2000): 275-95.
Jonsen, Albert R.  The Birth of Bioethics.  NY: Oxford University Press, 1998.
Jonsen, Albert R., Robert F. Veatch and Leroy Walters, ed. Sourcebook in Bioethics. 1998 R724 .S599 1998
Karp, N. and E. Wood.  Incapacitated and Alone:  Health Care Decision-Making for the Unbefriended Elderly.  2003.

Kaufman, Sharon R.  ... And a Time to Die: How American Hospitals Shape the End of Life.  2005.
Kleespies, Philip. Life and Death Decisions: Psychological and Ethical Considerations in End-of-Life Care. 2004. R726.8 .K565 2004
Koenig, Barbara A.  "Cultural Diversity in Decision-Making about Care at the End of Life."  In  Approaching Death:  Improving Care at the End of Life. Institute of Medicine. 1997: 363-82.
Koenig, Barbara A. and Elizabeth Davies.  "Cultural Dimensions of Care at Life's End for Children and Their Families."  In When Children Die:  Improving Palliative and End-of-Life Care for Children and Their Families.  Institute of Medicine.  2003.  Appendix D: 509-52.
Kung, Hans and Walter Jens.  Dying with Dignity: A Plea for Personal Responsibility.  1995.  R726 .K8613 1995.
LaFollette, Hugh, ed. . Oxford Handbook of Practical Ethics. 2003 BJ1031 .O94 2003
Landay, D. S.  Be Prepared:  The Complete Financial, Legal, and Practical Guuide for Living with a Life-Challenging Condition.  St. Martin's, 1999.
Larson, Edward J. and Darrel W Amundsen.  Different Death: Euthanasia and the Christian Tradition.  1998.  R726 .L369 1998.
Lock, Margaret.  Twice Dead: Organ Transplants and the Reinvention of Death.  2002.
Lock, Margaret, Allan Young and Alberto Cambrosio, eds.  Living and Working with the New Medical Technologies: Intersections of Inquiry.  2000.
Mackler, A., ed.  Life and Death Responsibilities in Jewish Biomedical Ethics. 2000.

Magnusson, Roger S.  Angels of Death: Exploring the Euthanasia Underground.  2002.  R726 .M28 2002
McCally, Michael, ed. Life Support:  The Environment and Human Health.  2002
Meisel, A. and K. L. Cerminara.  The Right to Die:  The Law of End-Of-Life Decision-Making.  2004.

Meyer, C. A Good Death:  Challenges, Choices, and Care Options.  1998.
Moller, David Wendell.  Dancing with Broken Bones:  Portraits of Death and Dying among Inner-City Poor.  2004.
Morgan, J., ed. 
Ethical Issues in the Care of the Dying and Bereaved Aged.  1996.
Muth, Annemarie, ed.  Death and Dying Sourcebook:  Basic Consumer Health: Information for the Layperson About End-of-Life Care and Related Ethical and Legal Issues. Reference R726.8 D3785 2000
Munson, Ronald.  Intervention and Reflection: Basic Issues in Medical Ethics. 7th edition 2003.   R724 .I57

Munson, Ronald.  Raising the dead : organ transplants, ethics, and society 2002 RD120.7 .M86 2002

Olshansky, S. Jay and Bruce A. Carnes.  The Quest for Immortality:  Science at the Frontiers of Aging.  2001.
Pellegrino, E., P. Mazzarella, and P. Corsi, eds.  Transcultural Dimensions in Medical Ethics.  1992.

Peppin, J. F., M. J. Cherry, and A. Iltis, eds.  The Annals of Bioethics:  Religious Perspectives in Bioethics.  2004.

Post, S., ed.  Encyclopedia of Bioethics.  3rd ed.  (2004) QH332 .E52 2004

President's Council on Bioethics.  Beyond Therapy:  Biotechnology and the Pursuit of Happiness.   2003  http://www.bioethics.gov/reports/beyondtherapy/index.html
Price, David P. T. Legal and Ethical Aspects of Organ Transplantation 2000  K3611.T7 P75 2000

Puntillo, Kathleen, et al.  "End-Of-Life Issues in Intensive Care Units:  A National Random Survey of Nurses' Knowledge and Beliefs."  American Journal of Critical Care.  10:4 (2001): 216-29.
Quill, Timothy E. and Margaret P. Battin.  Physician-Assisted Dying: The Case for Palliative Care and Patient Choice.  2004.

Randall, Fiona and R. S. Downie.  Palliative Care Ethics: A Companion for All Specialties. NY: Oxford UP, 1999. R726 .R35 1999
Rubin, Susan B.  When Doctors Say No:  The Battleground for Medical Futility.  1998.

Scherer, Jennifer and Rita J. Simon.  Euthanasia and the Right to Die: A Comparative View.  1999.  R726 .S336 1999.

Silveira, M. J., et al.  "Patients' Knowledge of Options at the End of Life: Ignorance in the Face of Death."  Journal of American Medical Association.  284:19 (2000): 2483-88.

Snyder, Lois and Arthur L. Caplan.  Assisted Suicide: Finding Common Ground.  2002.  R726 .A855 2002.

Spargo, Clifton. The Ethics of Mourning: Grief and Responsibility in Elegiac Literature. 2004 On Order

Spiro, Howard M., Mary G. McCrea Curnen, and Lee Palmer Wandel.  Facing Death:  Where Culture, Religion and Medicine Meet.  1996.

Torr, James D., ed.  Euthanasia: Opposing Viewpoints. 2000. H31.062 E91 2000
Torr, James, ed.. Medical ethics. 2000 H31.C97 M48   

Torr, James D. and Laura K. Egendorf, eds. Problems of Death: Opposing Viewpoints. 2000. H31 .O62 P97 2000

Urofsky, Melvin I.  Lethal Judgments:  Assisted Suicide and American Law.  2000.  KF3827 .E87 U755 2000.
Veatch, Robert F., ed. Medical Ethics. 2nd ed. Boston: Jones and Bartlett, 2002. (Ramapo has 1997 edition at R724 .M2927 1997)


Walsh, Fiona and Monica McGoldrick. eds.  Living Beyond Loss.  Death in the Family.  2nd ed. 2004.
Walters, C. M.  "Understanding and Supporting African-Americans' Perspectives of End-of-Life Care Planning and Decision Making."  Qualitative Health Research.  11:3 (2001): 385-98.

Werth, J. L., Jr. and D. Blevins, eds.  Psychosocial Issues Near the End of Life: A Resource for Professional Care Providers.  Forthcoming.
Winslow, Gerald R. and James W. Walters, eds.  Facing Limits:  Ethics and Health Care for he Elderly.  1993.

World Health Organization (WHO).  "WHO Definition of Palliative Care."  2005.  http://www.who.int/cancer/palliative/definition/en/

Youngner, Stuart J., Robert Arnold, and Renie Schapiro, eds.  The Definition of Death: Contemporary Controversies.  Baltimore: Johns Hopkins UP, 1999. RA1063.D44 1999

Youngner, Stuart J., Robert Arnold, and Renie Schapiro, eds.  Organ Transplantation; Meanings and Realities.  Madison: University of Wisconsin Press, 1996. RD120.7 .0724 1996

Youngner, Stuart J., Renie Schapiro, and Martha W. Anderson, eds.  Transplanting Human Tissue: Ethics, Policy, and Practice, 2003. RD120.75 .T745 2004

Links:
American Counseling Assocation:   http://www.counseling.org:  Brain Injury and Brain Death Sources: http://www.changesurfer.com/BD/Brain.html; Euthanasia and End of Life Decisions:  http://ethics.acusd.edu/Applied/Euthanasia/
National Association of Social Workers:  http://www.socialworkers.org/practice/standards ; Not Dead Yet: Americans with Disabilities:  http://www.notdeadyet.org/; President's Council on Bioethics.   2003  http://www.bioethics.gov/
Social Issues:  http://mel.lib.mi.us/social/SOC-death.html; Soros on Assisted Suicide etc.:
 http://www.soros.org/death/links/pas.html; World Health Organization (WHO)  http://www.who.int/cancer/palliative/definition/en/