D&D Bib Children, Adolescents, and Dying

Death and Dying, Life and Living Links and Biblio: Children & Adolescents Living with Life-Altering Illness and Disabilities; Dying Children and Adolescents

| D&D Biblio Individual Sections Links |

See also AIDS, Caregiving, Children and Grief, Grief, Life Threatening Illnesses; Loss of a Child; Loss of a Sibling; Rituals; Schools/Education; Sickle Cell

Websites: American Academy of Pediatrics http://www.aap.org/

Americans for Better Care of the Dying (ABCD) http://www.abcd-caring.org/

The Candlelighters Childhood Cancer Foundation® (CCCF) http://www.candlelighters.org/

The Centers for Disease Control and Prevention (CDC) http://www.cdc.gov/

Children's Hospice International: 1-800-24-CHILD http://www.chionline.org/

Children's International Project on Palliative/Hospice Services (ChIPPS); National Hospice and Palliative Care Organization http://www.nhpco.org/

The Elizabeth Glaser Pediatric AIDS Foundation: http://www.pedaids.org/

End of Life Care for Children and Their Families: Ethical Dimensions http://www.HELIX.com

Growth House: life-threatening illness and end of life care. http://www.growthhouse.org/

Hospice Foundation of America http://www.hospicefoundation.org/

Hospice & Palliative Care Federation http://www.hospicefed.org/

Hospice Net http://hospicenet.org/

National Hospice and Palliative Care Organization http://www.NHPCO.org/

National Children's Cancer Society http://www.nationalchildrenscancersociety.com

National Library of Medicine and the National Institutes of Health offer Medline http://www.nlm.nih.gov/medlineplus/deathanddying.html

Bibliography:

Adams, David W. and Eleanor J. Deveau. Beyond the Innocence of Childhood. 3 vols. Baywood, 1995. Vol. 1: Factors Influencing Children and Adolescents' Perceptions and Attitudes Toward Death. Vol. 2: Helping Children Cope with Life-Threatening Illness and Dying. Vol. 3: Helping Children and Adolescents Cope with Death and Bereavement.

Anspach, Renee. Deciding Who Lives: Fateful Choices in the Intensive Care Nursery. Berkeley: Univ. of California Press, 1993.

Armstrong-Dailey, Ann and Sarah Zarbock, eds. Hospice Care for Children. 2001.

Ashton, Joyce with Dennis Asthton. Loss and Grief Recovery: Help Caring for Children with disabilities, Chronic, or Terminal Illness. 1996.

Bearison, David J. They Never Want to Tell You: Children Talk About Cancer. 1999

Bluebond-Langner, Myra. In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child. Princeton UP, 1996 BF789 .D4 B635 1996

Brown, T. (2006). Comprehensive Handbook of childhood cancer and sickle cell disease. Oxford University Press.

Carter, Brian S., Marcia Levetown, eds. Palliative Care for Infants, Children, and Adolescents: A Practical Handbook. 2004

Corr, Charles A. and David E. Balk, eds. Handbook of Adolescent Death and Bereavement. NY: Springer, 1996.

Corr, Charles A. and Donna M. Corr, eds. Handbook of Childhood Death and Bereavement. NY: Springer, 1996.

Davies, Betty. Shadows in the Sun: The Experience of Sibling Bereavement in Childhood. Washington, D. C.: Taylor and Francis, 1998.

DeFord, Frank. Alex: The Life of a Child. 1983 (Cystic Fibrosis) PQ2603 .E362 M613 1973

Field, Marilyn and Richard E. Berhman, eds. When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. 2002.

Graham-Berman, Sandra A. and Jeffrey L. Edleson. Domestic Violence in the Lives of Children. 2001. HQ784.V55 D65 2001.

Hawkins, Anne Hunsaker. A Small, Good Thing: Stories of Children with HIV and Those Who Care For Them. NY: W.W. Norton, 2000.

Hawton, Keith. Suicide and Attempted Suicide Among Children and Adolescents. 1986. HV6546.H39 1986

Hayman, Laura L. Chronic Illness in Children: An Evidence-Based Approach. 2002. RJ380 .C5875 2002

Hilden, Joanne and Karen Lindsay: Shelter from the Storm: Caring for a Child with a Life Threatening Condition. 2002

Hollinger, Paul C. Suicide and Homicide Among Adolescents. 1994. HV6546 .S833 1994.

Icon Health Publications. (2004). Sickle Cell Anemia - a Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References by Icon Health Publications. Icon Group International.

Janes-Hodder, Honna and Nancy Keene. Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers. 2002.

Keene, Nancy. Childhood Leukemia: A Guide for Famillies, Friends, and Caregivers. 3rd ed. 2002.

Keene, Nancy, Wendy Hobbie, Kathy Ruccione, and Linda Lamb, eds. Childhood Cancer Survivors: A Practical Guide to Your Future. 2nd ed. 2002

Kelly, Katherine and Mark Totten. When Children Kill: A Social-Psychological Study of Youth Homicide. 2002. HV9067 .H6 K42 2002

Kubler-Ross, Elisabeth. On Children and Death. 1983. BF723 .D3 K827 1985.

King, Robert A. and Alan Apter. Suicide in Children and Adolescents. 2003. RJ506.S9 S86 2003.

McCallion, P. & Janicki, M. (Eds.). (2000). Grandparents as carers of children with disabilities : facing the challenges. NY: Haworth Press. HV888 .G73 2001

Peterkin, Allan D. and Frances Middendorf. What About Me? When Brothers and Sisters Get Sick. 1992 Ages 5-8

Rickgarn, Ralph L. V. Perspectives on College Student Suicide. Death, Value and Meaning Series. 1994.

Shiminski-Maher, Maria Sansalone and Patsy McGuire Cullen. Childhood Brain and Spinal Cord Tumors: A Guide for Families, Friends and Caregivers. 2001.

Silverman, Phyllis Rolfe. Never Too Young to Know: Death in Children's Lives. NY: Oxford UP, 2000. BF723 .D3 S58 2000

Sourkes, Barbara M. Armfuls of Time: The Psychological Experience of the Child with a Life-Threatening Illness. Pittsburgh: University of Pittsburgh Press, 1996.

Trickett, Penelope K. and Cynthia J. Schellenbach, eds. Violence Against Children in the Family and the Community. 1998. HQ784 .V55 V48 1998

Wailoo, K. (2006). The troubled dream of genetic medicine: Ethnicity and innovation in Tay-Sachs, Cystic Fibrosis, and Sickle Cell Disease. John Hopkins University Press.

Woznick, Leigh A. and Carol D. Goodheart. Living with Childhood Cancer: A Practical Guide to Help Families Cope. 2001.

Children with AIDS: http://www.aidskids.org/

National SIDS Resource Center: http://www.sidscenter.org

American Academy of Pediatrics/Palliative Care for Children: http://www.aap.org/policy/re0007.html

Yellow Ribbon Suicide Prevention Project: http://www.yellowribbon.org/