Page maintained by Kay Fowler, last updated 06/24/09

 

 

ONLINE SUPPORT RESOURCES FOR

PEOPLE EXPERIENCING ILLNESS, CRISIS, LOSS

 

Aging and Elderly Supports:

 

Ethnic Elders Care: http://www.ethnicelderscare.net/

Ethnic Elders links: http://www.ethnicelderscare.net/links.htm


Caregiver Support:

AIDS Caregivers Support Network www.wolfenet.com/acsn

Caring Connections: http://www.caringinfo.org/

CaregiverNJ  http://www.state.nj.us/caregivernj/

Family Caregiver Alliance - New Jersey Caregiver Programs http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=1235

National Alliance for Caregiving www.caregiving.org

Partnership for Caring www.partnershipforcaring.org

 

End-of-Life decision making

Access to End of Life Care www.access2eolcare.org

Aging with Dignity www.agingwithdignity.org

American Society for Bioethics and Humanities www.asbh.org

American Society of Law, Medicine, and Ethics www.aslme.org

Careplaner.org www.careplanner.org

Center for Death Education and Bioethics

The Center for Practical Bioethics www.practicalbioethics.org

Compassion and choices www.compassionandchoices.org

Death with Dignity www.deathwithdignity.org

Donate Life www.organdonor.gov

Duke Institute on Care at End of Life www.iceol.duke.edu

Ethics Updates www.ethics.sandiego.edu

Growthhouse www.growthhouse.org

Hastings Center www.thehastingscenter.org

Last Acts www.lastacts.org

Medline Plus Health Information www.nlm.nih.gov/medlineplus

National Alliance for Children with Life-Threatening Conditions www.chionline.org

National Donor Family Council (NFDC) www.donorfamily.org

National Institutes of Health Bioethics Resources on the Web www.nih.gov/sigs/bioethics/

Organ donation regulations www.organdonor.gov

Promoting excellence in end-of-life care www.promotingexcellence.org

University of Miami Ethics Program www.ethics.miami.edu

 

Grief Support:

 

General Grief Resources

AARP (American Association of Retired Persons) materials and resources on loss

http://www.aarp.org/family/lifeafterloss/

Bereavement and disability: http://www.bereavementanddisability.org.uk/BSLD3/BSLD3_App.htm

Centering Corporation – Books and resources for bereaved

http://www.centering.org/index.php?page=registr

Good Grief Resources for bereaved and caregivers  http://www.goodgriefresources.com/

Grief Net www.rivendell.org

GriefNet –  http://www.griefnet.org/  offers e-mail support groups for the bereaved

griefHaven  https://www.griefhaven.org/index-firstpage.shtml  support for those who have lost a child, sibling, or grandchild

GriefZone (American hospice foundation) http://www.americanhospice.org/index.php?option=com_content&task=view&id=30&Itemid=45

GROWW (Grief Recovery Online) –  http://www.groww.com/

 

National Funeral Director of Americas (NFDA) resources for grief –  http://www.nfda.org/index.php/public-home/grief-resources-

National Grief Support Services: http://www.griefsupportservices.org/newgrief/griefsupportservices/library.php

National Mental Health Association Bereavement Resources: www.nmha.org/infoctr/factsheets/42cfm

Open to Hope http://opentohope.com/

Open to Hope Resources links: http://opentohope.com/resources/links-resources/

Tom GoldenÕs Grief Web site: http://www.webhealing.com/

 

Loss of a Child

Alive Alone: Support for Bereaved Parents http://www.alivealone.org/

Baby Steps:  Support for Bereaved Parents  http://www.babysteps.com/

Bereaved Parents USA  http://www.bereavedparentsusa.org/

Center for Loss in Multiple Births (CLIMB)  http://www.climb-support.org/

Compassionate Friends http://www.compassionatefriends.org/

MADD (Mothers Against Drunk Driving)  http://www.madd.org/

National SIDS Resource Center  http://www.sidscenter.org/

New Jersey SIDS Alliance Email: njsids@yahoo.com

Now I Lay Me Down to Sleep:  Photographers supporting bereaved parents (NILMDTS)  http://www.nowilaymedowntosleep.org/

Parents of Murdered Children (POMC) http://www.pomc.com/index.htm

Remembering Our Babies - Official Website for October 15*   www.october15th.com

SHARE Pregnancy and Infant Loss Support  http://www.nationalshare.org/

SIDS Network  http://sids-network.org/

 

Loss of a Parent

 

Remembering Mom: http://www.rememberingmom.org/

 

Loss of a Partner

Gay and Lesbian Widows.com http://www.gayandlesbianwidows.com/

Gay Marriage and Gay Widowhood

http://www.gaypsychotherapy.com/hglrwidower.htm

GriefÕs Journey (spousal loss): http://www.griefsjourney.com/

WidowNet www.widownet.org

Widowed Persons Service American Association of Retired Persons www.aarp.org

 

Loss of a Pet

Association of Pet Loss and Bereavement http://www.aplb.org/

Pet Grief Support Page www.petloss.com

 

Loss of a Sibling

 

Mourning Our Brothers and Sisters (Sibling Loss): http://www.pos-ffos.com/groups/mobs.htm

Sibling Survivors www.siblingsurvivors.com

Twinless Twins  http://www.twinlesstwins.org/

 

Loss in the Workplace

Coping with loss in the workplace: http://www.cope-inc.com/loss.html

 

Grief Resources for Students

National Students of AMF Support Network:  http://www.studentsofamf.org/-_National_College_Student_Grief_Awareness_Week-pid-87.html

National Conference on Student Grief: http://www.studentsofamf.org/-_National_Conference_on_College_Student_Grief-pid-65.html

 

Grief Resources for Children and Families:

Alcove Center for Grieving Children & Families  (Southern Jersey)

http://www.thealcove.org/

APA on children: http://www.apa.org/topics/topicchildren.html

Barr Harris ChildrenÕs Grief Center: http://www.barrharris.org/

Children's Trauma Recovery Foundation: www.childrenstrauma.org/

Comfort Zone Camp for bereaved children

http://www.comfortzonecamp.org/

Comfort Zone Camp - No charge nonprofit camp for siblings and children (age 7-17) coping with the loss of a sibling or parent

Dougy Center for Grieving Children www.grievingchild.org

Family Support Center of New Jersey  http://www.fscnj.org/

KIDSAID  http://kidsaid.com/ email support groups and other online resources for bereaved children.

Make a Wish Foundation of America www.wish.org

 

Health and Health Care Information:

 

American Cancer Society www.cancer.org

American Lung Association www.lungusa.org

The ALS Association (Amyotrophic Lateral Sclerosis ŌLou GehrigÕs DiseaseĶ) www.alsa.org

AlzheimerÕs Association www.alz.org

Black WomenÕs Health Imperative http://www.blackwomenshealth.org/site/c.eeJIIWOCIrH/b.3082485/k.BEBA/Home.htm

Center for Disease Control and Prevention (CDC) www.cdc.gov/index.htm

CDC National Prevention Information Network www.cdcnpin.org

Cross-cultural Health Project: http://www.xculture.org/

Elton John AIDS Foundation www.ejaf.org

Gay MenÕs Health Crisis www.gmhc.org

Leukemia and Lymphona Society www.leukemia.org

National Alliance for Hispanic Health: http://www.hispanichealth.org/

National Center for Health Statistics (NCHS) http://www.cdc.gov/nchs/

National Health Information Center: http://www.health.gov/nhic/NHICScripts/Entry.cfm?HRCode=HR0081

National Minority AIDS Council: http://www.nmac.org/

National Native American AIDS Prevention Center: http://www.nnaapc.org/

National Stroke Association www.stroke.org

Native American Cancer Research: http://natamcancer.org/

Selected patient information resources in Asian Languages: http://spiral.tufts.edu/

Valley Hospital (Ridgewood) Medical Information Slideshows and Videos by topic http://www.valleyhealth.com/LibraryContent.aspx?ctype=slideshow

World Health Organization www.who.int

 

Hospice/Palliative Care and Support of the Dying and their Caregivers:

American Academy of Hospice and Pallative Medicine www.aahpm.org

Americans for Better Care of the Dying: http://www.abcd-caring.org/

American Hospice Association:  www.amercanhospice.org

Canadian Palliative Care Association www.cpca.net

ChildrenÕs Hospice International www.chionline.org

City of Hope Pain and Palliative Care Center: http://prc.coh.org/

European Association for Palliative Care www.eapcnet.org

Get Palliative Care http://www.getpalliativecare.org/

Hospice and Palliative Nurses Association www.phna.org

Hospice Association of America www.nahc.org

Hospice Foundation of America  http://www.hospicefoundation.org/

Hospice Information (International) www.hospiceinformation.info

National Alliance for Children with Life-Threatening Conditions www.nacwltc.org

National Association of People with AIDS www.napwa.org

National Hospice and Palliative Care Organization www.nhpco.org

National Hospice Work Group www.nhwg.org

Pain.com: http://pain.com/

Stop Pain Org www.stoppain.org

 

Hospice/Palliative Care for Children living with Illness/Children who are dying

Candlelighters Childhood Cancer Foundation www.candlelighters.org

ChildrenÕs Hospice International chiorg@aol.com

Children with AIDS project: http://www.aidskids.org/

 

Memorialization of the Deceased

Cremation Society of North America www.cremationassociation.org

Death Rituals & Funeral Customs www.encarta.msn.co

Funeral Consumers Alliance www.funerals.org

Funeral and Memorial Societies of America www://ubiweb.c.champlain.edu/famsa.directory.htm

International Association of Pet Cemeteries www.iaopc.com

Internet Cremation Society www.cremation.org

National Funeral Directors and Morticians Associations  www.nfdma.com

World Wide Cemetery www.interlog.com/cemetery

 

Military Personnel, Families and Veterans Supports

Army Family Readiness Groups (FRGs) in New Jersey

https://www.armyfrg.org/skins/frg/display.aspx?moduleid=e612bd22-cf80-48c1-a9ff-6e135889ae97&action=subsite_finder&Mode=User&FilterType=AND&State=New+Jersey&Country=United+States&AllowSSL=true

Military HOMEFRONT - New Jersey State Resources

http://www.militaryhomefront.dod.mil/portal/page/mhf/MHF/MHF_DETAIL_1?section_id=20.40.500.570.0.0.0.0.0&current_id=20.40.500.570.500.170.310.0.0

National Alliance on Mental Health Institutes (NAMI) in New Jersey: Veterans Supports in NJ

http://www.naminj.org/support/veterans_support.htm

NAES Lakehurst: https://www.cnic.navy.mil/lakehurst/index.htm

Navy Fleet Family Support Center – New Jersey  https://www.cnic.navy.mil/earle/index.htm

New Jersey National Guard Family Programs http://www.nj.gov/military/familysupport/home.html

New Jersey Operation: Military Kids

http://www.operationmilitarykids.org/public/statePOCHome.aspx?state=New%20Jersey

New Jersey State Summary of VA Programs & Services

http://www1.va.gov/opa/fact/statesum/njss.asp

NJ Vietnam Veterans' Memorial Foundation  http://www.njvvmf.org/

Society of Military Widows http://www.militarywidows.org

TAPS  http://www.taps.org/

VET Center for Bereavement http://www.vetcenter.va.gov/Bereavement_Counseling.asp

Pastoral Care:

Association for Clinical Pastoral Care Education: http://www.acpe.edu/

Assocation for Professional Chaplains: http://www.professionalchaplains.org/

 

Police/Firefighters/Emergency Responders Support

Concerns of Police Survivors (COPS):  www.nationalcops.org

National Fallen Firefighters Foundation www.firehero.org

 

Suicide Prevention, Hotlines and Support Resources

American Association of Suicidology www.suicidology.org

American Foundation for Suicide Prevention (AFSP)

http://www.afsp.org/

Canadian Association for Suicide Prevention www.thesuportnetwork.com/CASP

Distant Drums: Native American Suicide Grief: http://www.pos-ffos.com/groups/dd.htm

International Association for Suicide Prevention www.who.int/ina-ngo

Organization for Attempters and Survivors of Suicide in Interfaith Services www.oasis.org

Suicide Information & Education:  www.siec.ca

Suicide Hotlines in New Jersey  http://suicidehotlines.com/newjersey.html

SOS (Survivors of Suicide)  http://www.survivorsofsuicide.com/

TLC  http://www.tlcinstitute.org/

 

Traumatic Loss/Disasters

 

Aircraft casualties supports (ACCESS): http://www.accesshelp.org/

Assasination archives and resource center http://aarclibrary.org

Children's Trauma Recovery Foundation: www.childrenstrauma.org/

The Dougy Center: www.dougy.org

Families & Friends of Violent Crime Victims: www.fnfvcv.org

Gateway to PTSD Information: www.ptsdinfo.org

The Complicated Grief Website: info.med.yale.edu/psych/cgrief/

International Society for Traumatic Stress: www.istss.org

Murder Victims.com  www.murdervictims.com

National Center for Victims of Crime: www.ncvc.org

National Hazard Center http://Colorado.edu/hazards/resources/

National Organizaton for Victim Assistance www.try-nova.org

The History Place on Genocide http://historyplace.com/genocide

National Organization for Victim Assistance (NOVA) www.try-nova.org

The Trauma Center: http://www.traumacenter.org/

Violence and Injury Prevention (VIP) Website: www.fmhi.usf.edu/amh/homicide-suicide/

Violent Death Bereavement Society http://www.vdbs.org/

Washington Office of Crime Victims Advocacy: www.ocva.wa.gov/

 

Traumatic Stress and PTSD Supports

 

Gift from Within – Resources for PTSD Caregivers and Survivors: http://www.giftfromwithin.org/html/articles.html

International Society for Traumatic Stress Studies: http://www.istss.org/

PTSD  National Center for Postraumatic Disorder http://www.dartmouth.edu/dms/ptsd/index.html